i just got a live journal! never had one before, but i have had a mysapce and still do....... but i basicly just have this journal for one thing... a cerebral palsy journal... so i guess i will get started on that subject as my first journal entry.....
well..... it is always hard for me to explain what cerebral palsy is, or why i have it. I often times just tell people... " it is where your arms and legs dont work the way they are supposed to" but i wish it was really that simple.... so here i go i will try to explain...well it is a non-progressing disease that normally occurs during pregnacy, or shortly after. to me the statement "non-progressing" dosent make sense because mine seems to be getting worse with age. it can also be due to "birth trama" which is what the doctors suspect happened to me. cerebral palsy happens in the brain (cerebrum) and palsy refers to disorder of movement. so c.p can affect the brain, and always effects the movement. C.P hasn't effected my brain, except for the fact that only half of my brain works!!!!! (which is pretty cool) but there is no known cure for C.P which is very discouraging. but there are four different types of cerebral palsy... mine is Spastic Diplegia, which is where all of my limbs are affected, but my legs are affected more. some treatment options are Botox, Hyperbaric Oxygen (which is what we are now looking into), braces, surgery, etc.
sooooooo it may not make sense but its really not supposed to at first........ it is hard to understand and i dont see how i even do. but i guess u learn it after 12 yrs. living with it......... so that is cerebral palsy for you.....now that you know a little about what it is it will be easier for me to talk about what i am feeling or going through.
well..... it is always hard for me to explain what cerebral palsy is, or why i have it. I often times just tell people... " it is where your arms and legs dont work the way they are supposed to" but i wish it was really that simple.... so here i go i will try to explain...well it is a non-progressing disease that normally occurs during pregnacy, or shortly after. to me the statement "non-progressing" dosent make sense because mine seems to be getting worse with age. it can also be due to "birth trama" which is what the doctors suspect happened to me. cerebral palsy happens in the brain (cerebrum) and palsy refers to disorder of movement. so c.p can affect the brain, and always effects the movement. C.P hasn't effected my brain, except for the fact that only half of my brain works!!!!! (which is pretty cool) but there is no known cure for C.P which is very discouraging. but there are four different types of cerebral palsy... mine is Spastic Diplegia, which is where all of my limbs are affected, but my legs are affected more. some treatment options are Botox, Hyperbaric Oxygen (which is what we are now looking into), braces, surgery, etc.
sooooooo it may not make sense but its really not supposed to at first........ it is hard to understand and i dont see how i even do. but i guess u learn it after 12 yrs. living with it......... so that is cerebral palsy for you.....now that you know a little about what it is it will be easier for me to talk about what i am feeling or going through.
- Location:home
- Mood:determined
- Music:none

