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so i know i havent like posted an article in a while but i have been very busy! i am not sure exactly sure where i left off but i am doing very well. therapy got cut back to every other week and i am starting to get som definition in my calf muscle!!! So nathaniel who i talked about earlier and i have been now dating for about 3 months. to us days dont matter so no i dont know exactly how many days. As long as i am still alive and in Jesus Christ's care i will be happy. well maybe not all the time... in fact here lately i havent been happy at all. 

so it all started about 2 months ago. i started seriously worrying about my weight and the food i was consuming. so at first it started as just a diet but then it grew to become more serious. so i just started not eating. i dont want to be fat and gaining weight to me is like stabbing me with a knife. it hurts. i am scared...and lonely. but i would love to say i was improving but i am not.... i am getting worse. sometimes when i feel forced to eat or i get so hungry that i cant stand it i will just eat and then later i will make myself throw up. why? i really dont know... just to be skinny. Most people already think i am skinny enough but appariently they have never seen me in a bathing suit. i feel so alone and underestamated. i know though that God is here for me. And when i cry out to Him He hears me.. but sometimes its hard to believe. I feel Him there but He doesnt seem close enough. i need Him. i need His help... and i need Him to give me the power to tell Satan to "shut up!!!!" 

so on a happier note i am doing well with my singing and progressing well in school.

Math: A
Language arts: A
Science: B
Social Studies: B
Key boarding: B
Chorus: A+ (imagine that!)

so i guess that is all i have to say!!!!!

♥ erin

Lay and erin = LOVE!!!!!

  • Nov. 17th, 2007 at 8:48 PM
so i just got a new puppy named Laila (aka: Lay) and she is sooooooooo adorable!!!! I have only had her for like 7 hrs. and we are already in LOVE. She follows me everywhere and is only 6 wks old!!!!!!!!! but she is my baby already and is so cuddly!!!! She is half miniature pintcher and half something else, but she is still cute. We saved her out of a ditch and she has already settled in!!!! but i will have pics later!

13 yrs. Old!!!!!

  • Nov. 12th, 2007 at 9:03 AM
Soooooooo....... as most people know my birthday is on wed. of this week (nov.14)!!!!!! and my birthday has always been very special at my house...... when i was 1st born i weighed 1lb. 6oz..... yeah no joke!...... and on november 14th the dr.'s told her that if she wanted to see me she had better see me now before it was too late. my mom who was devistated wouldn't take that for an answer. and the next day i was alive! she said she remembers the dr. going through this horrifying long list of things that could be wrong with me and then asking..."Do you still want for us to take life saving prosedures?" my mom who of course is a firm believer in god and his miracles looked at him and said...."You do what you have to do, and leave God to the rest." and so it was! it was left to God to make His desision now and she remembers praying to God and saying, "Lord, I would like to have this little girl stay with me, but i do not want her to suffer. If her suffering is the only way You will keep her here, then You can take her. I know it will be up to You what happens, but I also know I will have to make some desisions too. Please help me be strong enough to make these desisions, and please help me make the right one's.  Lord I know You will do what's best for this little girl, and for that I can not even begin to thank you enough."  and from that day on began my whole life!!!!!!! i have been living for 13 yrs now. my orginal birthday is on Febuary 10, 1995, and i was born November 14, 1994. So on nov.14 we celebrate my birthday. and on feb. 10 we celebrate gods love for us!!! just though i would share that with you!

More info on stem cell therapy for C.P

  • Nov. 3rd, 2007 at 4:10 PM

well lets just say i have been researching a little bit.. (okay maybe a lot) but i have found out SO much about stem cell therapy and what kind of reasearch they are conducting for it!! i really dont have time right now to explain all i have found but here is one of the sites i learned alot from..... www.cnsfoundation.org .

but i am going to the doctor for a check-up sometime in febuary and that is when we are going to ask about what he thinks we should do (hopefully he will say yes)

p.s - either answer komen gives us will require alot of support and alot of prayers. If he says no that will be a very emontionaly hard time for me and my family. If he says yes (hopefully) that will be a very emontionaly and physically hard time for myself and my family also. So please keep my family, my doctor, and I in your prayers that the right decision will be made (and once again hopefully yes!!!). Also keep in your prayers that when the decision is made that there will be alot of support, and kindness from others. And that no matter what happens that we will find the strength and courage to carry on. 

Thank-You!!!      any questions??? e-mail me at : cerebralpalsyhope@yahoo.com or www.myspace.com/istilllovehim88

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okay lets try this one more time!!!! hope you u like it!!! this is just me..... ffar from perfect... far from beautiful.... far from normal... just me!!! i like erin... but i dont like the girl with cerebral palsy. i feel like i live two lives, cerebal palsy life, and normal live.... but it gets to a point where they crash. and what i mean is that i can no longer have 2 lives.... i have to deal with just one and that is hard. in elemtary school the teachers pro tected my 2 lives but i am 7th grade now and that has changed.... but this is my life.. no (s) just life. i hope u like the pics!

Just me

  • Nov. 3rd, 2007 at 10:53 AM

i made this slide show so that people could see the real me!!! i hope you like it!!!

<div><embed src="http://www.onetruemedia.com/view_slideshow_player?p=4179b6ee7dfd8a62800daf" quality="high" scale="noscale" width="600" height="500" wmode="transparent" name="FLVPlayer" salign="LT" flashvars="&p=4179b6ee7dfd8a62800daf&skin_id=406&host=http://www.onetruemedia.com&soundOn=1" type="application/x-shockwave-flash" pluginspage="http://www.macromedia.com/go/getflashplayer"></embed><div style="margin:0px;font:12px/13px verdana,arial,sans-serif;line-height:20px;padding-bottom:15px;width:600px;text-align:center;"><a href="http://www.onetruemedia.com/slideshow_player_link?p=4179b6ee7dfd8a62800daf&skin_id=406&source=slideshow" target="_blank"><img src="http://www.onetruemedia.com/slideshow_player_link_image/4179b6ee7dfd8a62800daf/406.gif" style="border:0px;" width="600" /></a><br/><a href="http://www.onetruemedia.com/landing?&utm_source=slideshow&utm_medium=txt5" target="_blank" style="text-decoration:none;">Free MySpace slideshows, photo and video editing at <span style="text-decoration:underline;">www.OneTrueMedia.com</span></a></div></div>

My dad and I!!!!

  • Nov. 1st, 2007 at 7:06 PM
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it will soon be my birthday and i decided to make a slide show of all the years me and my dad had together!! hope you like it!!!

Sorry!!!!

  • Oct. 30th, 2007 at 4:21 PM
sorry but i have been really busy here lately and just havent had the time to post any entries!!! but i will be going to the doctor thurs. and i will try to let you know what hapeened with that!!!!

It's been awhile..........

  • Oct. 26th, 2007 at 1:49 PM
well i know it's been a long time since i have posted a message but i just wanted to ask a question, someone e mailed me at cerebralpalsyhope@yahoo.com which is one of my email addresses with a message talking about her 6yr. old daughter with c.p and about stem cell therapy.... i really got alot out of the article they sent and i would like to know who it was and whtat their email address is b/c i have a few questions for them......


so i have had my cast off for a while but have really not seen much difference in anything... : (..... which is always a dissapointment. but i am getting a new brace soon that will just be clear w?pink straps because they didnt have the color i wanted..... but all is going okay for me.... but my friend nathaniel who also has C.P which also effects his hearing got put in the e.c class because he didnt understand what the interpreter was signing about and didnt really understand what it was all about. i think it is because they let him do anything he wanted last year and he never learned anything so this year he dosent understand..............



so anyway this is him..... and i dont think he deserves to be treated like that just because he dosent understand in stead of helping him to understand........ he is just like everyone else he is just stronger....all C.P kids are, they have to be and we are all stuburn and hardheaded at times but if we werent we would be alive today. : ) so..... this is nathaniel and he is my best friend ever!!!! he is such a great person to be around and i am not afraid about what people think about me or him ( we are the only two kids in our school with C.P ) i dont really care if people want to make fun of us because at the ropes course at webb a. murry school on monday we were stronger and did better than most of the kids there!!! the teachers were amazed!! ( and we were proud ) anyway if u want to talk to me more email me at : cerebralpalsyhope@yahoo.com


Never Alone 4:30 Barlow Girl Barlow Girl Christian 2 10/26/2007 1:57 PM 

Cast no more!

  • Oct. 18th, 2007 at 7:56 PM
well i got my cast off yesterday!!! (yes!) and yesterday i also got to go to "so you think you can dance" last night!!! even though i got my cast off yesterday my leg is still VERY weak.... and my leg is still so smal... :( but other than that all is good. but i did get home at like 12 am last night because of the final 10 so you think you can dance tour we went to last night so i am a little tired but life goes on!!!!

i will try...

  • Oct. 17th, 2007 at 7:26 PM
i will try to post journals as often as i can but bare with me because here lately i have been really busy!
as some of you know and as i explained in my first entry, is that cerebral palsy can not be cured. but every day doctors and scientists have come closer and closer to finding a cure. they have come very close in discovering that stem cell therapy can heal some of the damage to the brain and bodies of cerebral palsy patient. ( yes! ) so that means all i have to do is go to the doctor and get a stem cell treatment then go home and i will be MUCH better, right? WRONG. stem cell treatment is a very risky and unpredictable treatment option. and it often times take months for them to find a match. and sometimes the body can reject the stem cells given to them. and also it is very hard to find a doctor that will do stem cell treatmments on cerebral palsy patients. so where does that leave me???? well for now me and my mom are going to look into it and  ask dr.komen what he thinks......... but if anyone that reads this knows anything about stem cell treatments for cerebral palsy, please e-mail me at: cerebralpalsyhope@yahoo.com!!! thanks!
  1.    Stuck in Neutral     by: Erin Collins
     
    You would never expect anything from me would you?  I'm always sitting here just watching you.  Do you even think about how I feel?  I always hope for the best, but prepare for the worst.  I don't expect you to understand, but I will try to explain.  When you sit there and laugh, I know it's about me... I can hear it all.  I have feelings too, please try to understand that, I may be different, but it's not funny what I have to go through. Don't laugh at me, don't call me names, don't get your pleasure from my pain.  In God's eyes we're all the same, someday we'll all have perfect wings. Don't laugh at me.  We are all different in many ways, but laughing at me won't make anything better.  Things are different from my point of view, you're not going to go through what i have to go through, so be happy about that.  You don't go through the pain, disapointment, or the hurt, you are not made fun of or laughed at.  As long as it,s not happening to you, right?  My name is Erin, I'm living my life with Cerebral Palsy, I can only only explain so much, and you still won't understand.


i wrote this poem when i was in 2nd grade. my second grade year was probably the worst year i have ever had. i was made fun of all year with no stop! but i soon realized that normally people make fun of you to help themselfs feel better. but i also learned  that sometimes people laugh because they like you, somtimes they laugh to hurt you. it is sad but it's soooooo true. thankfully no one has really made fun of me this year. most kids think it is so cool that i get to ride in a wheel chair and get to be on cruthes.... but anyway i guess thats life!!!!! i hopw you like my poem!

i would like to hear from you!!!!!! if you know someone who has cerebral palsy, want to know more about it, or just want to get to know me, e-mail me at.......  cerebralpalsyhope@ yahoo.com    or myspace me...  myspace.com/istilllovehim88  thanks!!!!!!!! <3

 guess what? we just got a new kia rio5 (blue)  it is about the same color of this text. i would recommend this car to any new buyer...... the interior is grey and the features are b.e.a.utiful!!!!!! it rides very smoothly and i was very suprised because my mom isn't the type of person to just go out and buy a new car...... but God knows we needed it..... so we traded in our old ugly van and bout a new kia rio5!!!!!!! (update for c.p) - my left knee and leg was been hurting alot here lately..... and so has my right leg and my back but it is not hurting too much today (thank GOD!) but other than that i am doing well!!!

Cast dilemmas............

  • Oct. 12th, 2007 at 3:33 PM

well i have this orange and black cast that is striped that i picked out for halloween.... and unfortunatly i am pretty sure it probably won't be off till near that time (otc.29) but i just relized that my whole team at school is going on a REALLY fun field trip to the ropes course. which i am pretty sure will be like a HUGE obsticle course in mid air..... but it is on the 22nd and 23rd.......(sigh)... and i REALLY want to go on the field trip but i will still have a cast on. but we are hoping that maybe we can talk the doctor into taking it off sooner so that i can go on the really fun field trip. and here is what most people dont understand about C.P is that it's the little things that get on your nerves like not being able to go on a field trip because of a cast. the big things like having another surgery dosen't bother me as much (though it does get annoying also.) well i guess i will have to wait and see!!!!!!...(sigh)..... i sure do hope the doctors will have some compassion for me!cast

well guess who just had their 10th surgery last thursday......ME!!!!! well u know what that means wheelchair, crutches, and pretty halloween cast..... te he! but its not really that amazingly cool.... i always hate waking up from surgery b/c i always feel like i am going crazy..... but i didn't have any pain of anything like that (other than today...) and everything has been going smoothly...... i will keep updating!!!! 

cerebral palsy in a nutshell (well kinda!)

  • Oct. 11th, 2007 at 5:32 PM
i just got a live journal! never had one before, but i have had a mysapce and still do....... but i basicly just have this journal for one thing... a cerebral palsy journal... so i guess i will get started on that subject as my first journal entry.....

well..... it is always hard for me to explain what cerebral palsy is, or why i have it. I often times just tell people... " it is where your arms and legs dont work the way they are supposed to" but i wish it was really that simple.... so here i go i will try to explain...well it is a non-progressing disease that normally occurs during pregnacy, or shortly after. to me the statement "non-progressing" dosent make sense because mine seems to be getting worse with age. it can also be due to "birth trama" which is what the doctors suspect happened to me. cerebral palsy happens in the brain (cerebrum) and palsy refers to disorder of movement. so c.p can affect the brain, and always effects the movement. C.P hasn't effected my brain, except for the fact that only half of my brain works!!!!! (which is pretty cool) but there is no known cure for C.P which is very discouraging. but there are four different types of cerebral palsy... mine is Spastic Diplegia, which is where all of my limbs are affected, but my legs are affected more. some treatment options are Botox, Hyperbaric Oxygen (which is what we are now looking into), braces, surgery, etc.

sooooooo it may not make sense but its really not supposed to at first........ it is hard to understand and i dont see how i even do. but i guess u learn it after 12 yrs. living with it......... so that is cerebral palsy for you.....now that you know a little about what it is it will be easier for me to talk about what i am feeling or going through.